IMPORTANT INFORMATION

  • CFTR.info is an online educational resource on the genetics of cystic fibrosis (CF) and the role of CF transmembrane conductance regulator (CFTR) in normal human physiology as well as in CF.
  • The information contained herein is intended for healthcare professionals working within the European Union (EU).
  • The content of this website has been developed independently by a group of CF healthcare professionals and is for general information purposes only.
  • All of the information about CFTR and CFTR modulators has been obtained from referenced sources and is in the public domain.
  • This website is not intended to promote or advocate a particular course of treatment or any specific drug, whether licensed or unlicensed, nor is it intended to imply or suggest that any drug be used for any purpose other than that which for which it is licensed in the EU.

ABBREVIATED TERMS & CONDITIONS

  • While we endeavour to keep the information up to date and correct, we make no representations or warranties of any kind, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the website or the information and related graphics, or products and treatments, contained on the website for any purpose. Any reliance you place on such information is therefore strictly at your own risk.
  • In no event will we be liable for any loss or damage including without limitation, indirect or consequential loss or damage, or any loss or damage whatsoever arising from, or in connection with, the use of this website.
  • Through this website you are able to link to other websites which are not under our control. We have no control over the nature, content and availability of those sites. The inclusion of any links does not necessarily imply a recommendation or endorse the views expressed within them.
  • Every effort is made to keep the website up and running smoothly. However, we take no responsibility for, and will not be liable for, the website being temporarily unavailable due to technical issues beyond our control.

Please see the full Terms & Conditions before using this website.

 

I have read and understood the above

CFTR resource centre » Regional societies and advice centres » European societies and advice centres

European societies and advice centres

Click on the image hotspots or use the labelled buttons on the left to find out more.

Use the interactive map to explore some national CF associations located in Europe. You can discover more about the federation of national CF associations in Europe by visiting the Cystic Fibrosis Europe website.

Austria

Cystischen Fibrose Hilfe Österreich
Tel: +43 (0)2252 890018
Fax: +43 (0)2252 890018 15
Email: office@cf-austria.at

Belgium

Belgische Vereniging Voor Strijd Tegen Mucoviscidose (Flemish)
Tel: 02 675 57 69
Fax: 02 675 58 99
Email:  info@muco.be

Association Belge de Lutte contre la Mucovisidose (French)
Tel: 02 675 57 69
Tel: 02 675 58 99
Email:  info@muco.be

Czech Republic

Klub nemocných Cystickou Fibrózou
Tel: 257 223 028
Email: info@cfklub.cz

Denmark

Danish Cystic Fibrosis Association
Tel: +45 8667 4422
Fax: +45 8667 6666
Email: info@cff.dk

France

Association Vaincre la Mucoviscidose
Tel : 01 40 78 91 91
Fax: 01 45 80 86 44
Email: info@vaincrelamuco.org

Germany

Mukoviszidose e.V.
Tel: 0228 98780-0
Fax: 0228 98780-77
Email: info@muko.info

Christiane Herzog Stiftung für Mukoviszidose-Kranke
Tel: 0711 246 346
Fax: 0711 242 631
Email: info@christianeherzogstiftung.de

 

Greece

Hellenic CF Association (website is currently offline)

Address:
Parashou & Papathymiou 6
Athens 11475
Greece

Tel: 30 1064 31 883
Fax: 30 1051 46 429
Email: hel-cfa@otenet.gr

 

Ireland

The Cystic Fibrosis Association of Ireland
Tel: 01 496 2433
Fax: 01 496 2201
Email: info@cfireland.ie

 

 

 

Netherlands

Nederlandse Cystic Fibrosis Stichting
Tel: 035 64 79 257
Fax: 035 64 79 489
Email: info@ncfs.nl 

Norway

Norsk Forening For Cystisk Fibrose
Tel: 880 04 108
Email: post@nfcf.no

Poland

Fundacja Pomocy Rodzinom i Chorym na Mukowiscydozê MATIO
Tel/Fax: 12 292 31 80
Email: krakow@mukowiscydoza.pl

Polish Society to Fight Cystic Fibrosis
Address: ul. Prof. Jana Rudnika 3b, 34-700 Rabka-Zdroj
Tel +48 267 60 60 Ext. 349
Email: poczta@ptwm.org.pl

Portugal

Associaçäo Portuguesa de Fibrose Quística
Telf : + 351 223 750 943
Telm: + 351 964 826 983
Email: apfq@apfq.pt

Sweden

Riksförbundet Cystisk Fibros
Tel: 018 15 16 22
Fax: 018 12 70 74
Email: info@rfcf.se

UK

Cystic Fibrosis Trust
Tel: 020 8464 7211
Email: enquiries@cftrust.org.uk